I’ve left you hanging again and I apologize. I do post little snippets here and there on Facebook and Instagram for those of you that follow me in those places, but I sometimes forget to devote time to penning these posts. A couple of years ago, life got too busy and I stopped posting here consistently, at that time I also stopped posting on the Facebook page for this blog. My current plan is to try not to let that happen again – so go click “like” on that page (I’m working on cleaning it up and making it more functional*)! Even after my immediate cancer treatment is complete, I plan to continue blogging. Hopefully, it will look a little like what it was originally – a little bit from every area of our lives – family, faith, homeschool, military life, ideas from my kitchen, health, etc.
For now, I’ll get you up to date on my happenings over the last few weeks since my horrible allergic reaction.
I recovered from that allergic reaction in time to enjoy Michael’s squadron Christmas party on Friday, the 12th. It was a fun time. The location was great (private room at a large Mexican restaurant), the food was excellent, conversation was a nice reprieve from my daily happenings, and I even won one of the drawings!
Over the weekend, after a couple of weeks of the kids asking repeatedly (and truthfully, “Christmas spirit” has eluded me this year), we finally got the tree and a few other decorations up. It’s really nice having children who are getting older and are actually helpful. I put the tree together, fluffed it, and made sure the lights were all working, but I didn’t put a single ornament on it!! I sorted them out for the kids, but they did the decorating on their own. I think they did a nice job spacing the ornaments out and making the tree look nice. The weekend was fun. We were even able to finish our holiday baking (a couple of weeks early due to me not knowing how I would feel after chemo the following week) and assemble that little gingerbread village on the buffet table.
During the early part of the week, the kids and I were able to get all of our holiday goodies packaged up and delivered to our friends. As we were driving across the base, we even saw a young bull moose and his mama on the side of the road (this is not a rare occurrence, but still so very fascinating)!
On Wednesday, I had my fourth and final chemo infusion!! As I was leaving, all of the nurses gathered around me, gave me a beautiful card that each of them had written encouraging words in, hugged me, and sent me off with congratulations. It was very special and I was very emotional!
Thursday and Friday were fairly normal (I’m not even sure what “normal” means any more…), the kids had school, I cooked our meals, and those two days were generally uneventful.
Pretty much everything from when I went to bed Friday evening, until now, the wee hours of Wednesday morning (Christmas Eve) have been a blur. Due to the severe allergic reaction to the medication I was receiving to boost my white blood cell count (and keep me functioning mostly normally after a chemo infusion), I was unable to receive that injection this round. I have since discovered that that one injection was doing FAR more for my body that I gave it credit for.
I went to bed around 11:00pm Friday night and slept (only waking for things like the bathroom and drinks) until 3:00 pm the next day. I slept SIXTEEN hours. And it really didn’t stop there. The intense fatigue only just began to lift Tuesday evening. I also had several other side effects that I had not been experiencing. A few of them, like throat/mouth pain, brain fog, intense nausea and some vomiting could be eased with medication/natural remedies or by sleeping through them. Others, such as the bone crushing pain in my hips and legs, haven’t been so easy to deal with or relieve. I have been able to use a combination of heat, narcotics, essential oils, and movement to get some relief.
I did go in for labs on Monday afternoon and my numbers were all high enough that the NP wasn’t concerned that anything was wrong. He said I was feeling exactly how he expected and I should begin feeling better in about 2 days. That seems pretty accurate, because other than the pain I’m still having in my legs and hips, most of my other symptoms are significantly improved. I even felt hungry last night!
Considering that I titled this post “What’s Next?” I bet you’re actually curious to know that answer! Truthfully, due to all the complications and auto immune issues I bring to the table, what’s next hasn’t actually been decided yet. My oncologist is in the process of researching that and also discussing it with some of her colleagues. We do know it will be some sort of long term hormone therapy, but at this point I’m not even willing to speculate as to what the treatment will entail. The options are too varying. Michael and I will meet with her again on January 22. We hope to have more of a final answer at that point.
* It’s well past time for an update to my blog header, my icons and my Facebook cover. I’m open to options!
** I promise that one day I’m going to write out our long term plans for reconstruction, etc. It’s a lot to process and decide on and I want to make sure we’ve truly figured out the best plan for us before I write it all out.